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Discussion Starter · #1 ·
I posted this over on our sister site, RSN, but I figure the more prayers she gets, the better. So here goes:

For those of you who pray....say one for my daughter.

She's been in the ICU for nine days now. Diagnosed with a very rare blood disease known as TTP. Cause unknown. Basically, the body starts attacking its own platelets and red blood cells. The debris from the destruction of the blood components clogs up the smaller blood vessels. Kidneys are the first to go if left untreated. Treatment is done by daily plasma exchanges, a process where the patient's blood is removed and sent through a machine that separates the platelets and red blood cells from the plasma. Plasma is discarded and then fresh donor plasma is combined with the patient's platelets and red blood cells and put back in her body.

She's maintaining for now with the treatments, but not progressing as fast as the doctors would like to see. Platelets are at around 49,000.

Say a prayer for her platelet count to rise and stay above 100,000. 150,000 to 200,000 is normal.

Thanks,
Bob
 

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Discussion Starter · #2 ·
Update. Platelet count has dropped again. Now down to 37,000. Her mother and I are thinking about taking her to Gainesville or Jacksonville. We need to find a doctor who has treated this desease before.
 

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ITP or TTP is a very treatable disorder, unfortunately the plasma exchanges are a bear. Once the diagnosis is made you can generally have her treated in any hospital that has the equiptment to perfrom the pheresis. I wish her well in her treatment and recovery. I'll see if I can find out anything for you here.
 

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A good friend of mine's daughter had something like this. They found a doctor in Minnesota that is an expert on rare blood diseases. She ended up getting a bone marrow transplant. She stayed in Minn for a few months. And after treatments lived at a Ronald McDonald House in the area.
She is healthy now- fully recovered.
My prayers are with you and your daughter.
 

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Please keep us updated, My Wife and I will keep her in our thoughts and prayers.

Bill
 
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